I don't know about you, but I feel like we are one big family...
The Histio Family.

Yet at the same time, we are all in our own little boat dealing with each case of Histio as best we can while simultaneously trying to raise funds & awareness.

I felt as though we were each paddling as hard as we could toward something better for Histio; Yet, in different directions, different speeds and no matter how hard we tried, it was a drop in the bucket.

I've created this site to hopefully align all our individual boats, link us up together and CHARGE FORWARD creating such waves we can't help but to be HEARD!!!

As if in the same boat...but not really...
Found You! Now Let's Get To Work!!
How many of us have been told Histiocytosis is so rare you won't find another case of it at all OR you would have to really, really, really search to find one other person? Well, that's no longer the truth! With today's technology, we have been able to connect Histio families who were once fighting alone, with HUNDREDS of other Histio Warriors! Now that we've found each other...let's make an impact!!!

We hope to raise awareness!
  • We hope to connect those that want to actively participate in events!
  • We hope to flood our presence out to the World so they know we're here!
  • We hope to support EVERY Histio event held and to advertise it so that EVERYONE has a chance to attend!
  • We hope to promote Histio on TV, Radio, Newspapers, Internet, or any method that will get Histio one step further to a CURE!
Histiocytosis

It's not what can you do...
it's what WILL you do?
Click here for the latest info on who we're e-mailing, calling, petitioning, etc.

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Want to see what's going on across the Country for Histio? Check out the National Events and support our Warriors!

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Where ever the blood travels...so may Histiocytosis! Get the facts on symptoms to be sure you're on top of it!

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Symptoms Of Histio
Speak Out. Speak Up. Speak Loud!!!
      HIS . TI . O . CY . TO . SIS
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If You Have Histio, You Are NOT ALONE!
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Langerhans Cell Histiocytosis (LCH)

Hemophagocytic Lymphohistiocytosis (HLH)

Rosai-Dorfman Disease (RDD)

Juvenile Xanthogranuloma (JXG)

Erdheim-Chester Disease (ECD)