We Support Histio Warriors!!! :)
My name is Lelynn and I'm the wife of a Histio Warrior. We were "alone" for
about 1 year before I found the many other families facing the same disease
(or one related to it).
This site is intended to be used to unite both Histio Warriors as well as
supporting family members, friends and wonderful strangers!
It's our hope that we can rally together and make an impact with regard to
We want everyone to know about Histiocytosis!!!
We'd love to have you join in our fight as we e-mail, call, write, meet, march,
and what ever else we can come up with!
NOTE: If you've found this site and are looking for other Histio Families, feel free to contact me via email or find us all on Facebook! (Search: Lelynn Parys)
There is a debate on if Histiocytosis is an immunological disease or cancer...either way...the treatment may include chemotherapy or radiation.
Lift Up One Another. Support Each Other. Strive For A Cure.
HIS . TI . O . CY . TO . SIS
Wondering about an upcoming event?
Maybe you have a good idea on what we can do to spread awareness or promote Histio?
If so....Let us know!!!
Please know we have many, many Hisito families on Facebook! Feel free to look me up "Lelynn Parys" and I can connect you with our great support group! Search "OUR HISTIO FAMILY" for hundreds of Warriors/Supporters/Angels Families. Ask Questions, Vent, Find out who's on what treatment and how it's going...All sorts of great things! (once signed in visit: http://www.facebook.com/home.php?sk=group_171313569566535
Histio CURE Foundation - Foundation existed to do ONE thing....Find A Cure. Focus is Raising Funds FOR RESEARCH!
Histiocytosis Center at Texas Children’s Cancer Center - Program Dir. Dr. Kenneth McClain, M.D., Ph.D.
Histiocytosis Association of America - Education/Awareness/Research/etc... Jeff Toughill, President
The Histio Heroes Research Fund - (when I posted this, the first site wasn't working so I've included the Facebook page)
*FOUNDATIONS* (Let me know if you'd like your foundation listed!)
http://www.liamslighthousefoundation.org/ - There are many histio parents that want to do more in honor of their child without having to start their own organization. liam's lighthouse foundation has made this possible for these parents! We are happy to be able to honor these histio heros for their brave fight and courage against this horrific disease as we continue their fight for them.
If you are a histio parent and would like liam's lighthouse foundation to honor your child, please contact Michelle Schulze at firstname.lastname@example.org.
http://www.facebook.com/pages/Home-Runs-For-Hope/80299944207 - (its mission is to provide needed funding for our local children's hospital. He wanted to do something to help the hospital that helps him and it was his idea to base his donation on the number of home runs hit by our South Carolina Gamecocks)
*HISTIO AWARENESS WEBSITES:*
*ONGOING FUNDRAISING EFFORTS:*
*NATIONAL MARROW DONOR PROGRAM*
*OUTSIDE OF THE US HISTIO SITES*
*VARIOUS WEBSTIES FOR HELPING OUR CHILDREN*
Kids Hope Chest:
This website has various items available for children living in a hosptial. From decorated face masks, super hero capes, and even sells a Histiocytosis Awareness Bumper Stickers! http://www.kidshopechest.com
Tiny Sparrow Foundation:
A company that takes pictures of children who are facing a life threatening illness. (if anyone finds out that they would work with Adult histio warriors, please notify me!) http://tinysparrowfoundation.org/
The Miracle Party Foundation:
The Compassionate Friends:
I will do my best to keep this site up to date but please bare with me as our
family has a Histio Warrior currently battling Histio . ~Lelynn Parys
**HISTIO INFORMATION WEBSITES**